ISNA: Difference between revisions
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* Progress in patient-centered care: The CS states that psychosocial support is integral to care, that ongoing open communication with patients and families is essential and that it helps with well-being; that genital exams and medical photography should be limited; and that care should be more focused on addressing stigma not solely gender assignment and genital appearance. | * Progress in patient-centered care: The CS states that psychosocial support is integral to care, that ongoing open communication with patients and families is essential and that it helps with well-being; that genital exams and medical photography should be limited; and that care should be more focused on addressing stigma not solely gender assignment and genital appearance. | ||
* More cautious approach to surgery: The CS recommends no vaginoplasty in children; clitoroplasty only in more “severe” cases”; and no vaginal dilation before puberty. It also states that the functional outcome of genital surgeries should be emphasized, not just cosmetic appearance. Perhaps most importantly it acknowledges there is no evidence that early surgery relieves parental distress. | * More cautious approach to surgery: The CS recommends no vaginoplasty in children; [[clitoroplasty]] only in more “severe” cases”; and no vaginal dilation before [[puberty]]. It also states that the functional outcome of genital surgeries should be emphasized, not just cosmetic appearance. Perhaps most importantly it acknowledges there is no evidence that early surgery relieves parental distress. | ||
* Getting rid of misleading language: By getting rid of a nomenclature based on “hermaphroditism,” hoping that this shift will help clinicians move away from the almost exclusive focus on gender and genitals to the real medical problems people with DSD face. Improving care can now be framed as healthcare quality improvement, something medical professionals understand and find compelling. | * Getting rid of misleading language: By getting rid of a nomenclature based on “hermaphroditism,” hoping that this shift will help clinicians move away from the almost exclusive focus on gender and genitals to the real medical problems people with DSD face. Improving care can now be framed as healthcare quality improvement, something medical professionals understand and find compelling. | ||
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{{SEEALSO}} | {{SEEALSO}} | ||
* [[Accord Alliance]] | |||
* [[Ambiguous genitalia]] | * [[Ambiguous genitalia]] | ||
* [[Hermaphrodites with Attitude]] | * [[Hermaphrodites with Attitude]] | ||
* [[interACT]] | |||
{{LINKS}} | {{LINKS}} | ||
* | * {{URLwebsite|http://www.isna.org|2022-02-25}} | ||
* {{REFweb | * {{REFweb | ||
|url=https://www.hrw.org/report/2017/07/25/i-want-be-nature-made-me/medically-unnecessary-surgeries-intersex-children-us | |url=https://www.hrw.org/report/2017/07/25/i-want-be-nature-made-me/medically-unnecessary-surgeries-intersex-children-us | ||
|archived= | |archived= | ||
|title=I Want to Be Like Nature Made Me | |title=I Want to Be Like Nature Made Me | ||
|last= | |last= | ||
|first= | |first= | ||
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{{REF}} | {{REF}} | ||
[[Category:Acronym]] | |||
[[Category:Intactivism organization]] | [[Category:Intactivism organization]] | ||
[[Category:Intersex]] | |||
[[Category:Intersex organization]] | [[Category:Intersex organization]] | ||
[[Category:From IntactWiki]] | [[Category:From IntactWiki]] | ||