ISNA: Difference between revisions
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|first=Peter A. | |first=Peter A. | ||
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|last2=Houk | |last2=Houk | ||
|first2=Christopher P. | |first2=Christopher P. | ||
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|last3=Ahmed | |last3=Ahmed | ||
|first3=Faisal | |first3=Faisal | ||
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|author3-link= | |author3-link= | ||
|etal=yes | |etal=yes | ||
|title=Consensus Statement on Management of Intersex Disorders | |title=Consensus Statement on Management of Intersex Disorders | ||
|journal=Pediatrics | |journal=Pediatrics | ||
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* Progress in patient-centered care: The CS states that psychosocial support is integral to care, that ongoing open communication with patients and families is essential and that it helps with well-being; that genital exams and medical photography should be limited; and that care should be more focused on addressing stigma not solely gender assignment and genital appearance. | * Progress in patient-centered care: The CS states that psychosocial support is integral to care, that ongoing open communication with patients and families is essential and that it helps with well-being; that genital exams and medical photography should be limited; and that care should be more focused on addressing stigma not solely gender assignment and genital appearance. | ||
* More cautious approach to surgery: The CS recommends no vaginoplasty in children; clitoroplasty only in more “severe” cases”; and no vaginal dilation before puberty. It also states that the functional outcome of genital surgeries should be emphasized, not just cosmetic appearance. Perhaps most importantly it acknowledges there is no evidence that early surgery relieves parental distress. | * More cautious approach to surgery: The CS recommends no vaginoplasty in children; [[clitoroplasty]] only in more “severe” cases”; and no vaginal dilation before [[puberty]]. It also states that the functional outcome of genital surgeries should be emphasized, not just cosmetic appearance. Perhaps most importantly it acknowledges there is no evidence that early surgery relieves parental distress. | ||
* Getting rid of misleading language: By getting rid of a nomenclature based on “hermaphroditism,” hoping that this shift will help clinicians move away from the almost exclusive focus on gender and genitals to the real medical problems people with DSD face. Improving care can now be framed as healthcare quality improvement, something medical professionals understand and find compelling. | * Getting rid of misleading language: By getting rid of a nomenclature based on “hermaphroditism,” hoping that this shift will help clinicians move away from the almost exclusive focus on gender and genitals to the real medical problems people with DSD face. Improving care can now be framed as healthcare quality improvement, something medical professionals understand and find compelling. | ||
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ISNA felt need for an organization to assume the role of a convenor of stakeholders across the health care system and DSD communities, a role that ISNA itself could not fulfill due to being perceived as biased. | ISNA felt need for an organization to assume the role of a convenor of stakeholders across the health care system and DSD communities, a role that ISNA itself could not fulfill due to being perceived as biased. | ||
In 2007, ISNA sponsored and convened a national group of health care and advocacy professionals to establish a nonprofit organization charged with making sure the new ideas about appropriate care are known and implemented across the country. The resulting organization was [[Accord Alliance]], and ISNA’s funds and assets (including copyrights for the Handbook for Parents and Clinical Guidelines) were transferred to Accord Alliance. | In 2007, ISNA sponsored and convened a national group of health care and advocacy professionals to establish a nonprofit organization charged with making sure the new ideas about appropriate care are known and implemented across the country. The resulting organization was [[Accord Alliance]], and ISNA’s funds and assets (including copyrights for the Handbook for Parents and Clinical Guidelines) were transferred to Accord Alliance. | ||
{{SEEALSO}} | |||
* [[Accord Alliance]] | |||
* [[Ambiguous genitalia]] | |||
* [[Hermaphrodites with Attitude]] | |||
* [[interACT]] | |||
{{LINKS}} | {{LINKS}} | ||
* | * {{URLwebsite|http://www.isna.org|2022-02-25}} | ||
* {{REFweb | |||
|url=https://www.hrw.org/report/2017/07/25/i-want-be-nature-made-me/medically-unnecessary-surgeries-intersex-children-us | |||
|archived= | |||
|title=I Want to Be Like Nature Made Me | |||
|last= | |||
|first= | |||
|author-link= | |||
|publisher=InterAct | |||
|website=www.hrw.org | |||
|date=2017-07-25 | |||
|accessdate=2020-06-21 | |||
|format= | |||
|quote= | |||
}} | |||
{{REF}} | {{REF}} | ||
[[Category:Acronym]] | |||
[[Category:Intactivism organization]] | [[Category:Intactivism organization]] | ||
[[Category:Intersex | [[Category:Intersex]] | ||
[[Category:Intersex organization]] | |||
[[Category:From IntactWiki]] | [[Category:From IntactWiki]] | ||